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---your joints go out more than you do.
---you snap, crackle, and pop just like your favorite breakfast cereal.
---you spend 15 minutes drooling over all the braces in the pharmacy department at Target.
---you visit the local nursing home and find yourself jealous of the residents' tricked out walkers.
---you can dislocate or sublux a joint while just sitting there doing nothing.
---you dislocate your thumb by pulling up your sock.
---the ER doctor has to ask how to spell your disease and then googles it.
---your geneticist uses you to teach other doctors how to run the Beighton scale on patients and diagnose EDS.
---you have to pop a few joints back into place when you wake up in the morning.
---you have "brace lines" instead of regular tan lines.
---you can only regulate your body temperature about as well as a newborn.
---brain fog means that you have to write down EVERYTHING.
---your two year old gently touching your leg can make your eyes well up with pain because your entire body feels like an intense bruise.
---an itch on your back is never a problem because no matter where it is, you can reach it.
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| Photobomb courtesy of Davy |
---your friends look at you like you're speaking chinese when you rattle off big words like "Ehlers Danlos Syndrome" "Eosinophilic Esophagitis" and "Postural Orthostatic Tachycardia Syndrome."
---you live in fear that you'll get pulled over and have to take a field sobriety test because there's no way you're capable of walking a straight line.
---you've ever heard "it's all in your head."
---a trip to the dentist means your jaw will be at least partially dislocated and sore for a while.
---you're obsessed with anything that's zebra print!
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You know you have Ehlers Danlos Syndrome when...
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Would you add anything to this list?
---your friends look at you like you're speaking chinese when you rattle off big words like "Ehlers Danlos Syndrome" "Eosinophilic Esophagitis" and "Postural Orthostatic Tachycardia Syndrome." Not just your friends, even your doctors...
ReplyDelete...you know what's wrong with you is EDS but you can't actually make it into a geneticist to get diagnosed and none of your other docs know how to help you.